Mom's Story, A Child Learns About MS

Mom's Story, A Child Learns About MS
Available on Amazon and www.marynickum.com

Sunday, June 27, 2010

Outstanding Board Member

On June 20, at the Annual Meeting of the Outdoor Writers Association of America, Mary Nickum was awarded Outstanding Board Member, 2010 in recognition for her work to reorganize the Excellence in Craft (EIC) Contest and Awards. The EIC Awards recognize the best outdoor writing in 10 categories.

Thursday, June 10, 2010

The Microsoft Store and Mom's Story

The Microsoft Store will be hosting an event for kids and families that have or know someone with Multiple Sclerosis (MS) on July 30th, 2010 from 6:00-8:00 PM. You will have the opportunity to meet with Mary Jo Nickum, author of Mom’s Story; A Child Learns About MS. Mary has been diagnosed with MS for over 30 years and is an inspiration for all of those learning to cope with this challenging disease. Her book provides information on how to better understand MS, who gets it, how the disease is diagnosed, the various forms of MS and listing of material and organizations available to assist families in the fight against MS. While parents are learning from Mary Jo in the theatre area, the kids will be provided with fun activities to learn more about the store and the technology used in everyday life. They will even be introduced to future technology through an entirely interactive experience with the staff! We hope to see you there!
When: Friday July 30th, 2010
Welcome time: 6:00-6:30
Event time: 6:30-8:00pm
Where: The Microsoft Store
Scottsdale Fashion Square Mall
7014 E. Camelback Rd.
Scottsdale, AZ 85251
(480) 308-0800

Light Refreshments will be provided
**RSVP: Space is limited for this event, so please do not wait to RSVP.
RSVP: https://www.clicktoattend.com/invitation.aspx?code=149256

Friday, June 4, 2010

Positive Reply from Editor

I just received a positive reply from the editor to my picture book submission. I promised her a revision by mid July, but, right now, I really have no idea how I'm going to revise it. I'll give it some serious thought this month while I'm on a working vacation!

Tuesday, June 1, 2010

Mom's Story, A Child Learns About MS

I'm working hard on designing teaching materials for Mom's Story. Any suggestions would be appreciated. Thanks.

Saturday, May 29, 2010

Demand Studio

I signed up on Demand Studios. Does anyone have any experience with them?

Wednesday, May 26, 2010

Biomarkers Test for MS Nine Years Before Symptoms Appear

A small study analyzing the blood of healthy people who developed MS, along with the blood of those who did not, has uncovered “blood signatures” that may lead to a diagnosis of MS before symptoms appear, and consequently earlier and more effective intervention.

"We are not yet able to treat people with MS to prevent the onset of the disease but knowledge is power," says Anat Achiron, a professor of Tel Aviv University's Sackler Faculty of Medicine and vice-dean of research at Sheba Medical Center. "Every time we meet a new patient exhibiting symptoms of MS, we must ask ourselves how long this has been going on. We can diagnose MS by brain MRI, but we've never been able to know how 'fresh' the disease is."

If doctors can predict the onset of MS early enough, intervention therapies using immunomodulatory drugs or beta-interferon drugs that stave off MS symptoms might be used.

Examining blood samples of twenty19-year-old Israelis who were inducted into the army as healthy soldiers, and the nine of them who later developed MS, Achiron and her team at Sheba were able to use a "high throughput analysis" using more than 12,000 gene transcripts expressions. The screening compared similarities and differences in the blood of those who developed MS and those who did not, eventually establishing biological markers.

"Those who will develop MS will show a different blood signature from those who will not," says Achiron. "When we compared the gene expression signatures, we saw a similar pattern of the same working biological processes."

These early genetic markers may now be used to test for MS up to nine years before healthy young adults start developing symptoms. And because MS is thought to have a genetic component and a tendency to be found in siblings, Achiron says the biomarkers can be used as a tool for brothers and sisters of people with MS. The goal is to learn more about the genetics of MS through this new discovery, with the hope that early intervention therapies may be more effective, and help advance medicine toward a cure, according to Achiron.

Typically by the time a person notices symptoms, significant and irreversible nerve damage is already done.

MSFoundation

Thursday, May 20, 2010

Ning

I just joined a Ning. http://bookmarketing.ning.com/profile/MaryJNickum

A Ning is a social platform for an interest or passion online. Every member can reach millions of people from across the world to explore and express a particular interest, discover new outlets, and meet new people with shared pursuits.

I'm bringing the existence of a book marketing Ning to everyone's attention. Whether or not you choose to join, is your decision. I provided the link so you can check it out if you want.

As the author of a children's chapter book, I think any help with marketing is a plus. I think other authors may feel the same way.