Mom's Story, A Child Learns About MS

Mom's Story, A Child Learns About MS
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Showing posts with label COVID-19. Show all posts
Showing posts with label COVID-19. Show all posts

Tuesday, January 5, 2021

New advice for people with MS

Advice for people with MS

Current evidence shows that simply having MS does not make you more likely to develop COVID-19 or to become severely ill or die from the infection than the general population. However, the following groups of people with MS are more susceptible to having a severe case of COVID-19:

  • People with progressive MS
  • People with MS over the age of 60
  • Men with MS
  • Black people with MS and possibly South Asian people with MS
  • People with higher levels of disability (for example, an EDSS score of 6 or above, which relates to needing to use a walking stick)
  • People with MS and obesity, diabetes or diseases of the heart or lungs
  • People taking certain disease modifying therapies for their MS (see below)

All people with MS are advised to follow World Health Organization guidelines for reducing the risk of infection with COVID-19. People in the higher risk groups should pay particular attention to these measures. We recommend to:

  • Practice social distancing by keeping at least 1.5 metres* distance between yourself and others, to reduce your risk of infection when they cough, sneeze or speak. This is particularly important when indoors but applies to being outdoors as well.
  • Make wearing a mask a normal part of being around other people and ensure that you are using it correctly by following these instructions.
  • Avoid going to crowded places, especially indoors. Where this is not possible, ensure to wear a mask and practise social distancing.
  • Wash your hands frequently with soap and water or an alcohol-based hand rub (70% alcohol content is considered most effective).
  • Avoid touching your eyes, nose and mouth unless your hands are clean.
  • When coughing and sneezing, cover your mouth and nose with a flexed elbow or tissue.
  • Clean and disinfect surfaces frequently especially those which are regularly touched.
  • Talk to your healthcare provider about optimal care plans, through video consultations or in-person visits where needed. Visits to health clinics and hospitals should not be avoided if they are recommended based on your current health needs.
  • Stay active and try to take part in activities that will enhance your mental health and well-being. Physical exercise and social activities that can take place outside and with social distancing are encouraged.
  • Get the seasonal flu vaccination where it is available and encourage your family to do the same.

Caregivers and family members who live with, or regularly visit, a person with MS in one of the higher risk groups should also follow these recommendations to reduce the chance of bringing COVID-19 infection into the home.

* (National and international guidelines on physical distancing vary between at least 1 metre and 2 metres. People should consider their national guidance and be aware that these are minimum distances, longer being better.)

Advice regarding disease modifying therapies for MS

Many disease modifying therapies (DMTs) for MS work by suppressing or modifying the immune system. Some MS medications might increase the likelihood of developing complications from COVID-19 but this risk needs to be balanced with the risks of stopping or delaying treatment.

We recommend that people with MS currently taking DMTs continue with their treatment, unless advised to stop by their treating clinician.

People who develop symptoms of COVID-19 or test positive for the infection should discuss their MS therapies with their MS care provider or another healthcare professional who is familiar with their care.

Before starting on any new DMT or changing an existing DMT, people with MS should discuss with their healthcare professional which therapy is the best choice for their individual circumstances. This decision should consider the following information:

  • MS disease course and activity
  • The risks and benefits normally associated with different treatment options
  • Additional risks related to COVID-19, such as:
    • The presence of other factors for a more severe case of COVID-19, such as older age, obesity, pre-existing lung or cardiovascular disease, progressive MS, higher risk race/ethnicity etc, as listed above
    • The current and anticipated future COVID-19 risk in the local area
    • Risk of exposure to COVID-19 due to lifestyle, for example whether they are able to self-isolate or are working in a high-risk environment
    • Emerging evidence on the potential interaction between some treatments and COVID-19 severity

Evidence on the impact of DMTs on COVID-19 severity

Interferons and glatiramer acetate are unlikely to impact negatively on COVID-19 severity. There is some preliminary evidence that interferons may reduce the need for hospitalisation due to COVID-19.

The evidence available suggests that people with MS taking dimethyl fumarate, teriflunomide, fingolimod, siponimod and natalizumab do not have an increased risk of more severe COVID-19 symptoms.

There is some evidence that therapies that target CD20 – ocrelizumab and rituximab – may be linked to an increased chance of having a more severe form of COVID-19. However, these therapies should still be considered as an option for treating MS during the pandemic. People with MS who are taking them (or ofatumumab and ublituximab that work in the same way) should be particularly vigilant regarding the advice above to reduce their risk of infection.

More data on the use of alemtuzumab and cladribine during the COVID-19 pandemic are required to make any assessment of their safety. People with MS who are currently taking these therapies and are living in a community with a COVID-19 outbreak should discuss their current lymphocyte counts with their healthcare professional. (Lymphocytes are a type of white blood cell that helps protect the body from infection). If their counts are considered to be low they should isolate as much as possible to reduce their risk.

Recommendations on delaying second or further doses of alemtuzumab, cladribine, ocrelizumab and rituximab due to the COVID-19 outbreak differ between countries. People who take these medications and are due for the next dose should consult their healthcare professional about the risks and benefits of postponing treatment. People are strongly encouraged not to stop treatment without the advice of their clinician

 

Thursday, September 10, 2020

Staying Healthy and Minimizing the Spread of COVID-19

The federal government and the CDC are proactively working to minimize the introduction and spread of this virus within the United States. More time is needed for researchers to gain a greater understanding of the specific virus (SARS-CoV-2) that causes this specific coronavirus (COVID-19), before a vaccine and treatments may be developed. Until these become available, the CDC explains that “Nonpharmaceutical Interventions” (NPIs) are actions that people and communities can take to help slow the spread of illnesses.

Also known as “community mitigation strategies,” and independent of medications and vaccines, examples of these types of actions include disinfecting surfaces, washing hands, staying home when sick, increasing the distance between people at public gatherings, canceling or postponing special events, and closing schools and/or businesses as needed. Avoiding travel to affected countries, as well as keeping a distance from anyone showing symptoms of the coronavirus, is also vital to minimizing the spread of the coronavirus.

Staying healthy and reducing one’s risk is another important factor. The CDC and MSAA recommend the following “healthy habits” for preventing the flu (and other illnesses):

Get a flu vaccine and help stop the spread of germs (if recommended by one’s doctor) *Please note that the current flu vaccine is NOT effective against COVID-19; it is only noted to otherwise help people remain in good health.

Continue taking a disease-modifying therapy (DMT) and do not make any changes to one’s treatment regimen, unless advised by one’s physician; consult a medical professional with any concerns

Take flu antivirals, if prescribed

Avoid close contact with people who are sick

Stay home when sick, but be sure to consult a medical professional

Individuals should cover their mouth and nose with a tissue when coughing or sneezing, or use the inside of their arm to avoid spreading germs

Washing hands often helps to protect people from germs; if soap and water are not available, an alcohol-based hand rub should be used

Avoid touching the eyes, nose, or mouth – an illness may be spread when a person touches something that is contaminated with germs and then touches his or her eyes, nose, or mouth

Practice other good health habits, such as cleaning and disinfecting frequently touched surfaces at home, work, or school – especially when someone is ill; get plenty of sleep, be physically active, manage stress, drink plenty of fluids, and eat nutritious food

Anyone in close contact to someone with COVID-19 and who develops symptoms of COVID-19 should immediately call his or her healthcare provider to discuss symptoms and exposure

From: The Coronavirus and MS: What You Need to Know. The Motivator – Winter/Spring 2020

 

 

Saturday, May 2, 2020

More on COVID-19 and MS


Coronavirus Risk for People Living with Multiple Sclerosis (MS)
MS itself does not increase the risk of getting COVID-19. However, certain factors associated with your MS may increase your risk for complications:
  • Chronic medical conditions, such as lung disease, heart disease, diabetes, cancer, smoking and asthma
  • Significantly restricted mobility, such as needing to spend most of your day seated or in bed
  • Age 65 or older
  • Possibly taking certain disease modifying therapies that deplete immune system cells
  • Severe obesity or BMI higher than 40
  • Living in a long-term care facility
Sometimes, the body’s response to infections, including COVID-19, may cause a temporary worsening of MS symptoms. Typically, these symptoms settle down once the infection clears up. If you are experiencing new MS symptoms or have any concerns about any of your MS symptoms, please contact your MS healthcare provider.
 
Protecting Yourself from Coronavirus
The Centers for Disease Control and Prevention (CDC) provides recommendations on how to prevent the spread of COVID-19 and what to do if you show symptoms.   
Working and Coronavirus (COVID-19)
MS Healthcare Providers
Healthcare providers who treat people living with MS can find additional information in our Professional Resource Center.
Healthcare Workers Who Have MS
  • There is no increased risk of you getting COVID-19 because you have MS.
  • If you are concerned about your risk of getting COVID-19 because of the DMT you take, please contact your MS provider for advice.
  • There are no special PPE instructions for people with MS. You should follow the same precautions as other healthcare workers. If you are concerned about your risk due to your DMT, please contact your MS provider for advice.
Employee Rights
There are many protections that could be available to you if your employer is not being flexible with work from home options or workplace accommodations. Visit our employment resources page to learn more or contact an MS Navigator to discuss your individual rights and options.
Children with MS
There is no specific advice for children with MS; they should follow the advice above for all people with MS. The CDC has specific recommendations for children and COVID-19.
Pregnancy
At this time there is no specific advice for women with MS who are pregnant. There is general information on COVID-19 and pregnancy on the CDC website.
Additional Resources

Saturday, March 14, 2020

The Coronavirus and MS: What You Need to Know

Reviewed by MSAA Chief Medical Officer Barry A. Hendin, MD

Symptoms and Special Considerations for Individuals with MS

The “coronavirus disease 2019” (COVID-19) is a potentially serious respiratory disease that was first reported in December 2019 in China. As of early March 2020, the illness had made its way to almost 70 locations, including the United States, and has affected more than 90,000 individuals worldwide. Please be aware that these figures are expected to increase on a weekly or even a daily basis.
If exposed to this new coronavirus, symptoms may appear within two days to two weeks. Initial symptoms include:
  • Fever
  • Cough
  • Shortness of breath
According to the Centers for Disease Control and Prevention (CDC), individuals showing signs of the disease should isolate themselves from other people and animals, and immediately contact their physician. Unless a medical emergency, those affected should not go directly to a medical facility. This is in an effort to avoid spreading the illness to others and to enable the physician to be prepared when a patient with this illness arrives at the office.
The majority of individuals who catch the coronavirus will not experience a serious form of the illness and will not need to be hospitalized. Seniors (ages 60 years and older) as well as individuals with certain health conditions such as heart disease, lung disease/respiratory illness, and diabetes, seem to be at greater risk of serious illness.
Those at greater risk also include people whose immune systems are suppressed, such as individuals who take disease-modifying therapies (DMTs) to treat MS, as well as those with other illnesses that compromise the immune system and/or require similar medications. People with MS should not stop taking their DMT, or make any changes to their treatment regimen, without consulting their physician.
Another consideration for individuals with MS is the fact that an illness, infection, or particularly a fever, can cause a temporary flare-up of symptoms, known as a pseudoexacerbation. If ill with a flu or virus, people with MS and their care partners should be aware of this potential complication. A pseudoexacerbation is a temporary worsening of symptoms without actual myelin inflammation or damage, brought on by other influences. Once the illness, infection, or fever is resolved, the flare-up will usually remit within 24 hours.

For anyone whose illness is more severe, especially if affecting the ability to breathe or if the fever is high, he or she (or the care partner) should immediately contact a medical professional or call 911 and explain the situation. Immediate emergency assistance may be needed.


How is the Coronavirus Spread?

According to the CDC, the virus is thought to spread mainly from person-to-person. This may occur between people who are in close contact with one another (within about six feet) and respiratory droplets produced when an infected person coughs or sneezes can land in the mouths or noses of people who are nearby. These droplets may also possibly be inhaled into the lungs.
People are thought to be the most contagious when they are their sickest, when experiencing the most symptoms. Additionally, the CDC notes that some spread might be possible before people show symptoms, but this is not thought to be the main way the virus spreads.
The virus may also spread from contact with infected surfaces or objects when someone with the illness has left germs on those surfaces by touching, sneezing, or coughing. When a healthy person touches an infected surface, and then touches his or her own mouth, nose, or eyes, it is possible that the virus may be spread this way. However, it is not thought to be the main way the virus spreads.
Some reports have questioned if the coronavirus may be caught through packages sent through the mail or products imported from areas with high numbers of cases. Several sources, including the CDC, state that germs could not live long enough on a mailed package to be a threat and that the risk is very low.

What to Do if Mildly Sick with the Coronavirus

As noted earlier, the majority of individuals who catch the coronavirus will not experience a serious form of the illness and will not need to be hospitalized. To follow are guidelines issued by the CDC for those who are mildly ill and are able to be isolated at home during their illness. However, a healthcare professional should immediately be contacted to determine (1) an individual’s illness severity and (2) to assess whether the residential setting is appropriate for home care.
Considerations include:
  • The patient (with coronavirus) is stable enough to receive care at home
  • Appropriate caregivers are available at home
  • The patient can recover in a separate bedroom, without sharing immediate space with others
  • Resources for access to food and other necessities are available
  • The patient and other household members have access to personal protective equipment (at a minimum, gloves and facemask) and are capable of adhering to recommended precautions, such as respiratory hygiene, cough etiquette, and hand hygiene
  • No household members are present who are at an increased risk of complications from a coronavirus infection; these include individuals who are 65 or older, young children, pregnant women, people who are immunocompromised, or those who have chronic heart, lung, or kidney conditions
The CDC lists the following recommendations if mildly sick with the coronavirus and able to be isolated and recover at home:
  • Stay home except to get medical care
  • People who are mildly ill and able to isolate at home during their illness should restrict activities outside of the home, except for getting medical care; do not go to work, school, or public areas; avoid using public transportation, ride-sharing, or taxis
  • At home, separate from other people and animals
  • Stay in a specific room at home and away from other people; use a separate bathroom if available
  • Restrict contact with pets and other animals while sick with COVID-19 until more information is known about the virus; avoid petting, snuggling, being kissed or licked, and sharing food
  • When possible, have another household member care for the animals; if no one is available, wash hands before and after interacting with pets and wear a facemask
  • Call ahead before visiting one’s doctor
  • If a medical appointment is planned, call the healthcare provider and explain the situation; this will help the healthcare provider’s office take steps to keep other people from getting infected or exposed
  • Wear a facemask when around other people, pets, and before entering a healthcare provider’s office; if unable to wear a facemask, others should not stay in the same room or they should wear a facemask if entering the room

Staying Healthy and Minimizing the Spread of COVID-19

The federal government and the CDC are proactively working to minimize the introduction and spread of this virus within the United States. More time is needed for researchers to gain a greater understanding of the specific virus (SARS-CoV-2) that causes this specific coronavirus (COVID-19), before a vaccine and treatments may be developed. Until these become available, the CDC explains that “Nonpharmaceutical Interventions” (NPIs) are actions that people and communities can take to help slow the spread of illnesses.
Also known as “community mitigation strategies,” and independent of medications and vaccines, examples of these types of actions include disinfecting surfaces, washing hands, staying home when sick, increasing the distance between people at public gatherings, canceling or postponing special events, and closing schools and/or businesses as needed. Avoiding travel to affected countries, as well as keeping a distance from anyone showing symptoms of the coronavirus, is also vital to minimizing the spread of the coronavirus.
Staying healthy and reducing one’s risk is another important factor. The CDC and MSAA recommend the following “healthy habits” for preventing the flu (and other illnesses):
  • Get a flu vaccine and help stop the spread of germs (if recommended by one’s doctor)
  • Continue taking a disease-modifying therapy (DMT) and do not make any changes to one’s treatment regimen, unless advised by one’s physician; consult a medical professional with any concerns
  • Take flu antivirals, if prescribed
  • Avoid close contact with people who are sick
  • Stay home when sick, but be sure to consult a medical professional
  • Individuals should cover their mouth and nose with a tissue when coughing or sneezing, or use the inside of their arm to avoid spreading germs
  • Washing hands often helps to protect people from germs; if soap and water are not available, an alcohol-based hand rub should be used
  • Avoid touching the eyes, nose, or mouth – an illness may be spread when a person touches something that is contaminated with germs and then touches his or her eyes, nose, or mouth
  • Practice other good health habits, such as cleaning and disinfecting frequently touched surfaces at home, work, or school – especially when someone is ill; get plenty of sleep, be physically active, manage stress, drink plenty of fluids, and eat nutritious food
  • Anyone in close contact to someone with COVID-19 and who develops symptoms of COVID-19 should immediately call his or her healthcare provider to discuss symptoms and exposure

Coronavirus Background and Overview

As noted earlier, the “coronavirus disease 2019” (COVID-19) is a potentially serious respiratory disease that was first reported in December 2019 in China. As of early March, 2020, the illness has made its way to almost 70 locations, including the United States, and has affected more than 90,000 individuals worldwide. Please be aware that these figures are expected to increase on a weekly or even a daily basis.
According to the Centers for Disease Control and Prevention (CDC), this new virus that causes the COVID-19 disease has been named “SARS-CoV-2,” and is part of a large family of coronaviruses that are common in people and many different species of animals, including camels, cattle, cats, and bats. The CDC explains that although rare, animal coronaviruses can occasionally infect people and then spread between people. Since the outbreak began in an area of China that has large seafood and live-animal markets, an initial animal-to-person spread is suggested. From there, the increasing number of people being diagnosed in areas without exposure to animal markets indicates a change to a person-to-person spread.
The coronavirus ranges from mild to severe. A report from China estimates that 16% of those diagnosed will experience a serious illness, so the majority of those affected will experience a milder form of the disease. The CDC notes that older people and individuals with certain health conditions such as heart disease, lung disease, and diabetes, seem to be at greater risk of serious illness.
According to the CDC, no scientific reports have been published about the susceptibility of pregnant women to the current coronavirus. Pregnant women do experience immunologic and physiologic changes that may make them more susceptible to viral respiratory infections, including COVID-19. No evidence indicates that children are more susceptible to this virus, and most confirmed cases of COVID-19 reported from China have occurred in adults.
Those at greater risk also include people whose immune systems are suppressed, such as individuals who take disease-modifying therapies (DMTs) to treat MS, as well as those with other illnesses that compromise the immune system and/or require similar medications. People with MS should not stop taking their DMT, or make any changes to their treatment regimen, without consulting their physician.
Despite the current warnings, the CDC states, “At this time, however, most people in the United States will have little immediate risk of exposure to this virus. This virus is NOT currently spreading widely in the United States. However, it is important to note that current global circumstances suggest it is likely that this virus will cause a pandemic. This is a rapidly evolving situation and the risk assessment will be updated as needed.”
An illness is considered a “pandemic” when it meets the following criteria: causing an illness that has resulted in death; sustained person-to-person spread, and worldwide spread of the new virus.

Closing Notes

MSAA’s Chief Medical Officer Barry A. Hendin, MD, explains that members of the MS community need to be aware of the risks and take extra steps to minimize their chances of catching the coronavirus. “Although only a small number of individuals in the United States have tested positive for the coronavirus, this number may increase exponentially in the coming weeks. People 60 and older, as well as those with certain health conditions or weakened immune systems, need to be particularly careful.
“Many individuals with MS take a disease-modifying therapy to control disease activity, and as is often the case with these types of disease-fighting medications, the immune system becomes suppressed and may be challenged to combat germs and infections. Even those who are not on a long-term treatment for MS may be more susceptible to infections and less able to fight-off illness. For these reasons, members of the MS community – including patients, care partners, and family members – need to be extra careful during this flu season to avoid catching the coronavirus and giving it to others.
“Strategies such as avoiding crowded public places, washing hands often, and keeping a distance from anyone who may appear to be sick are all vital to reducing your risk of catching the coronavirus. Remembering not to touch your eyes, nose, or mouth when in public and touching the same door handles, chair arms, and other things that multiple people have touched is also important. While we don’t want people to feel they are being held captive in their own homes – and we of course encourage individuals to go outside and be active – it may be wise at this time for people to temporarily avoid the more crowded types of activities and events.
“Unfortunately, this may mean reducing your time doing the things you may truly enjoy, such as shopping, going to the gym, and even attending educational programs. Waiting for things to settle down and become less of a risk may be in your best interest. Of course, if you feel that you have been exposed to someone sick or that you may have symptoms of the coronavirus, please be sure to contact your healthcare professional immediately. I want to wish everyone a very safe and healthy spring season.”

Online Resources

Please visit the coronavirus section of the Centers for Disease Control and Prevention (CDC) website, which provides full coverage of all the details involved with the virus, its risks, and the latest findings.
Please refer to the coronavirus section of the WebMD website for an overview of the coronavirus outbreak along with timely updates on the spread of the illness.

For More Information

For general information or to speak with a trained Client Services Specialist, please call MSAA’s Helpline at (800) 532-7667, extension 154. Questions to MSAA’s Client Services department may also be emailed to MSquestions@mymsaa.org.

Written by Susan Wells Courtney, MSAA Senior Writer
Reviewed by Dr. Barry A. Hendin, MSAA Chief Medical Officer